I just wanted to offer everyone a quick update regarding my son. It is good news, so bear with me! The messages of support and prayer after my last blog about him were so touching and meant a great deal to all my family.
We found out a few weeks ago that he had not in fact had viral meningitis. The lumbar puncture test showed no sign of the infection. We were then in the distressing position of learning from his consultant that they were looking at either a condition so rare that it only affects about 20 people in the world and which they have never treated, or tumour re-occurrence with talk of biopsy and treatment if that were the case.
Needless to say, it was terrifying news. Nick was due to have a more detailed than usual MRI scan early in December, but the scanner broke down in the morning and it had to be moved on a week. His consultant’s appointment also had to be moved on to yesterday, 23rd December. All of that put a bit of a dampener on Christmas preparations. He spent two and a half hours in the MRI scanner and we, along with the friends we are blessed with, have been praying (in our case frantically) for a good result.
We saw the consultant yesterday and it was the best news we could have hoped for. The scan was much improved. The areas of concern from the November scan had returned to normal. They now believe he has a condition called SMART – Stroke-like Migraine Attacks after Radio Therapy – a late effect of radiotherapy which is so rare that there isn’t really a treatment regime. Given the alternative to this, it was a relief and the best we could have wished for. Nick has once again faced all of this with his now customary strength and bravery.
We owe a huge debt of thanks to all of our friends, and to two in particular again. To everyone who sent messages of support and prayer through this blog and on social media, we cannot thank you enough. If anyone is looking for a demonstration of the power of prayer, you have it here. When Nick was originally poorly we used to joke (although how funny it is I don’t know) that God would save him just to get everyone that was praying for him to quiet down, such was the powerful response to his illness.
Thank you too to all of the amazing doctors, nurses and staff at the hospitals where he has been looked after. Their care has been faultless and I have nothing but praise for every single individual and the team of care and dedication that they make up.
I also need to say a huge thank you to the man upstairs. I have begged him for this outcome, one voice amongst many, and I believe that He has heard our prayers and answered them. My debt to Him increases and I still have no notion of how to pay it back beyond thanks, love and trying to live my life in a way that would make Him proud.
Well, it’s Christmas Eve. I hope that this is a positive message for you as we all hold our breath for the main event tomorrow. I wish every single one of you a Merry Christmas and the happiest of New Years. Enjoy the festive season. Forget the presents for a moment and enjoy the time and the company. Raise a glass over dinner to the real reason we celebrate. It’s Jesus’s 2014th birthday and he’s still going strong. Maybe take a mince pie to a neighbour or pick the phone up to a relative you haven’t spoken to for a while. If you know someone who’s on their own, give them ten minutes of your day. It just might mean the world to them.
As Tiny Tim says ‘God bless us, every one’.
And He will, you know. Just believe, and ask.
Merry Christmas everyone, and thank you.
The Lewis family